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StephN · 09-17-2008, 02:37 PM

Somehow, I was sure I had put in my 2 cents worth here. Obviously not ...

Had a very busy summer and still going strong.

My fight with this disease began in fall of 2000 - just 8 years ago. Wish I could say 8 years NED and ditch the Herceptin (just got it again today) like Marily.

But I CAN say that I am just a little over SIX years since declared NED after becoming Stage IV.

I fortunately do not have the side effects that Marily mentioned, but that does not mean that I might not get to the same point after so many years on Herceptin.

Going forward with new information from those who are just a little ahead of me. Really appreciate the sharing that takes place here!

09-17-2008, 02:37 PM	#80
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Somehow, I was sure I had put in my 2 cents worth here. Obviously not ... Had a very busy summer and still going strong. My fight with this disease began in fall of 2000 - just 8 years ago. Wish I could say 8 years NED and ditch the Herceptin (just got it again today) like Marily. But I CAN say that I am just a little over SIX years since declared NED after becoming Stage IV. I fortunately do not have the side effects that Marily mentioned, but that does not mean that I might not get to the same point after so many years on Herceptin. Going forward with new information from those who are just a little ahead of me. Really appreciate the sharing that takes place here! __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.