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Marilyn's poem reminds me of the "full story" of this disease. It's such a roller coaster ride and for some, one that goes on and on and on. The NED successes bring out the sunshine and gives hope for us all. I went for my herceptin infusion last Friday (took 5 hours there going round and round with the insurance folks, but seems I'm on for the next 6 months) and for the first time ever, Dr. K wrote NED on my chart. Little thing that's HUGE to my brain! I'm so lucky and grateful and prayful for warriors with battles yet to fight. For today I am NED and grateful. Those three letters written on my chart gave me encouragement to up my pace of returning to "normal" life. (Not sure I ever had one) But I continue to pray for those in the midst of battle. ma
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MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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