HER2 Support Group Forums - View Single Post - HER2+ and BRCA mutations

Kimberly Lewis · 07-28-2009, 04:28 PM

I contacted a genetic counselor directly and once I was assured that I would be covered by my insurance went ahead and did the test. The counselor thought I had a 15 - 20% chance of being positive. I was positive for BRCA 2 and so was my daughter. My oncologist was shocked, and surprised when he received the results of the test. He never would have reccomended it and my daughter wouldn't be getting the advanced screening that she gets now without my getting that test done. Thats my 2 cents on the issue!

07-28-2009, 04:28 PM	#14
Kimberly Lewis Senior Member Join Date: Nov 2005 Location: Hilton Head Island, SC Posts: 279	I didn't go through my Oncologist to be tested... I contacted a genetic counselor directly and once I was assured that I would be covered by my insurance went ahead and did the test. The counselor thought I had a 15 - 20% chance of being positive. I was positive for BRCA 2 and so was my daughter. My oncologist was shocked, and surprised when he received the results of the test. He never would have reccomended it and my daughter wouldn't be getting the advanced screening that she gets now without my getting that test done. Thats my 2 cents on the issue! __________________ Kim Diagnosed 7/05 Stage 3a er+(45%) pr+(68%) Her2+ (40%) 3.8 cm + .8cm multi focal - pleomorphic lobular tumors high grade DCIS 7/20 nodes BRCA 2 positive as of 5/07 surgeries: double mastectomy, hysterectomy (LAVH) A/C,Herceptin for 1 year completed 11/06 femara