HER2 Support Group Forums - View Single Post - Metastatic Breast Cancer and Nancy Brinker

tricia keegan · 10-16-2011, 02:58 PM

I think this is a wonderful letter, I moderate the Komen message boards and when I joined six years ago there was no mention of stage iv and if someone at that stage posted I noticed no one replied. I'm glad to say I had a direct input in beginning a stage iv forum for women who do land there so they have someone to discuss their fears with who undertands, if her2+ I direct them here! I think Nancy Brinker has done so much for bc as a whole but do agree more needs to be done now in research directed towards progression and will send this link on to someone in komen I know in the hope it helps a little.

10-16-2011, 02:58 PM	#8
tricia keegan Senior Member Join Date: Nov 2005 Location: Ireland Posts: 3,463	Re: Metastatic Breast Cancer and Nancy Brinker I think this is a wonderful letter, I moderate the Komen message boards and when I joined six years ago there was no mention of stage iv and if someone at that stage posted I noticed no one replied. I'm glad to say I had a direct input in beginning a stage iv forum for women who do land there so they have someone to discuss their fears with who undertands, if her2+ I direct them here! I think Nancy Brinker has done so much for bc as a whole but do agree more needs to be done now in research directed towards progression and will send this link on to someone in komen I know in the hope it helps a little. __________________ Tricia Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr Rads x 36 ..oophorectomy August '06 Currently taking Arimidex.. June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density. Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc. 2014 Normal Dexa scan 2018 Mammo all clear, still NED!