HER2 Support Group Forums - View Single Post - Stage v- a hard to swallow fact

dchips1 · 01-07-2013, 10:02 PM

keep fighting, It is hard to hear the C word. This cancer journey is a path which we are on and somedays the path is a little rough, but with family and friends(including all the posters here), you will be able to Live and adjust, to all the appointments, and get back to living your life.

One of the things I have done as well as others is if you can't or don't want to work is go on Social security disability, once you are stage 4 basically you are automatically eligible and your child gets half the amount, that you get. After eligibility I believe you can still do part time work if you need to. after 2 years you are eligible for medicare.you can fill out app online or call them.

Prayers of peace and healing,
Darita mom to 6 five between the ages of 21-26, a 12 yr old, 1 6 yr old grandson. God, good dr's and medicine has let me see 5 graduations, a grandson, and still aiming for 2018 for 12yr old HS graduation, more grandkids, and continued healing

01-07-2013, 10:02 PM	#14
dchips1 Senior Member Join Date: May 2006 Location: Mesa, Az Posts: 219	Re: Stage v- a hard to swallow fact keep fighting, It is hard to hear the C word. This cancer journey is a path which we are on and somedays the path is a little rough, but with family and friends(including all the posters here), you will be able to Live and adjust, to all the appointments, and get back to living your life. One of the things I have done as well as others is if you can't or don't want to work is go on Social security disability, once you are stage 4 basically you are automatically eligible and your child gets half the amount, that you get. After eligibility I believe you can still do part time work if you need to. after 2 years you are eligible for medicare.you can fill out app online or call them. Prayers of peace and healing, Darita mom to 6 five between the ages of 21-26, a 12 yr old, 1 6 yr old grandson. God, good dr's and medicine has let me see 5 graduations, a grandson, and still aiming for 2018 for 12yr old HS graduation, more grandkids, and continued healing __________________ dx 1/06 IDC 2cm 38 at dx 2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis 3/06-9/06Taxol/Carbo/zometa/Herceptin 3/07 6 brain mets WBR down to c-2 4/07 osteonecrosis jaw 1/08 mri new 9mm lesion right lower side 2/08 gamma knife 1 lesion 11/08 regamma 10/09 latent rad necrosis to brain met, 1/20/10 crani: lesion necrosis w active cells continue her add tykerb 1/11 NED just Ingrown toenail! YEAH GOD 8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans oct -march 11 new neuro deficits lower legs 3/12 2 spinal metsTykerb, Herceptin 04/12 4050cGY rads T 2-4 & T7-9 5/12 Brain,cervical lumbar clear/thoracic slight decrease 10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly. 9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec. last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative. 10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney! 12/13 Mri brain no new lesions, cervical and lumbar arthritis. Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain 1/29/14 HIHO HIHO its off to Neuro surgery I go Life is Good when you wake up in the morning and take a breath and know that God has given me another day.