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Re: 15 years stage IV - no drugs in 8yrs - still NED
Steph, what wonderful news! I do not visit this site as often as I did the first couple years after my diagnosis. Your story has always stuck with me and given me hope. Please never stop sharing your amazing updates! I am happy to report that I am over five years out from my initial diagnosis of stage 4, and still on my first maintenance cocktail (herceptin+Tykerb). My newborn baby boy is now a big Kindergartener and my beautiful daughter just turned 9. Long may the blessings continue.
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9/11 - dx 3 mnths after giving birth to my 2nd child. (not a clogged milk duct) ER/PR- HER2+++
10/11 - Initially staged at 2b after unilateral mastectomy
11/11 - CT scan 4 weeks later found spots on bones and liver (crap!) Stage 4
12/11 - starting TCH
5/12 - STABLE. stoping TCH after 6 months and continuing Herceptin with Tykerb and Xgeva
8/12 - STABLE, but I'm calling it NED because all they see is bone scaring!
11/12 - STABLE
2/13 - STABLE
6/13 - STABLE
9/13 - STABLE
12/13 - STABLE
3/14 - STABLE
6/14 - STABLE
9/14 - STABLE
12/14 - STABLE
...Continue Herceptin and daily Tykerb and scans every 4 months
1/16 - STABLE
11/18 - Five level spinal fusion from collapsing vertebrae due to spinal Mets/radiation
12/19 - STABLE
Mom to Audrey (12 yrs) and Hudson (8)
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