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Old 05-12-2010, 05:42 AM   #8
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Re: Hoarssness of voice and right supraclavicular node enlarged: help!!

I have just read the letter from my past visit from the oncologist to the dr (you can opted to get copy of communication)

it says "that the node is too small at present and I have been reassuring to her but I would like to see her again when she comes for her Herceptin.."

That definitely does not sound good please send me good vibes I am so scared. The scarry moments I have had in teh past have never been so strong and I was always the one acting to get scan other something, this is the first time that the oncology team seem concerned..and really the alternative (infection is very small).
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama

Last edited by fullofbeans; 05-12-2010 at 07:10 AM..
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