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Anyone Discontin Hercep <LVHF, but OK on Tykerb?
Since my CA27-29 is steadily going up, I am trying to be proactive and research what I may ask for next if needed. Had to discountinue Herceptin after 7 mos due to LVHR of 40. LVHR did return to normal after 6 mos. I am still on beta blocker and ace inhibitor just to be on the safe side. When I bring up the question of "Could I take Tykerb in the future?" to my Oncol and Cardiologist , they both say "Let's not go there. You are fine right now and there is no reason to believe you will be any different in the near future". I do understand their reasoning, (must keep a positive attitude) but I do so love to always have a plan for what if......
Also, is anyone just taking Tykerb w/o any form of Chemo? Thanks for any input you may have. Peace be with you. Karen
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04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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