Re: TDM1 EAP - Good news for those in TDM1 EAP study who need to travel
This is great news, Chrisy! I am participating in the T-DM1 trial in Charleston, SC, traveling there from Atlanta every 3 weeks. Yesterday, I had my first scan after starting the trial. Good news! All tumors had either shrunk or remained stable. I had mixed feelings about the results, because the road trips had been more grueling than I had anticipated they would be when I signed on to the trial. And I was thinking that if the results were not good, that I could get a tried and true, although not as promising treatment AT HOME in Atlanta. But now that I've read your thread, I have hope of soon being able to get the T-DM1 treatments in Atlanta!!!!! I'm thrilled! Thank you so much for posting.
On a side note, for this treatment I was flown, for the first time, by Angel Flight Soars, a local nonprofit that flies patients to treatments all over the Southeast. It was a big improvement to driving.
Ann
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5/05-2 lumpectomies, cancer in 3 sentinel nodes,
9 nodes removed. HER2+++, ER/PR-.
7/05-bilateral mastectomy, reconstruction from thighs.
Port placement in chest.
7/05 to 12/06-Chemo: A/C, Taxol, Herceptin. NED. Port removed.
12/05-silicone implant.
5/08-METS to liver, bones, nodes in chest wall & around kidneys. Power Port placed in chest. Chemo: Xeloda, plus Zomeda, Herceptin.
2/11-CT showed new tumors inside pelvic wall. Largest 2 cm.
4/11-CT shows largest tumor had grown to 3 cm. Started T-DM1 trial.
6/11-CT shows largest Tumor shrank. Others stable.
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