HER2 Support Group Forums - View Single Post - Chronic pain- who's got it?

KristinSchwick · 03-14-2014, 07:23 PM

Okay met-sisters,
I've been on so many therapies that the side effects are catching up with me and its hard to figure out where my latest "chronic" pain is coming from now.

I've got horrible pain in my feet and ankles- I think it is neuropathy from my short stent (4 months) on Halaven, but it could also be joint pain from the aromasin (I have bad overall achiness). My feet feel swollen, tired, itchy and hurt even when I'm not on them. The pain is more intense in my right foot, where I had radiation therapy for a pinched nerve from the cancer in my hip. It also could be the cancer itself pressing on something causing bilateral pain.

So I begged my oncologist to put me on some stronger pain killers, tylenol with codeine wasn't cutting it. So now I'm on morphine ER and am surviving with 1-2 pills per day. Anyone know anything about chronic pain? Do you think its from neuropathy? Cancer? or the chemo? Do you have chronic pain and if so what do you take for it. Is it related to bone specific disease or other mets?

03-14-2014, 07:23 PM	#1
KristinSchwick Senior Member Join Date: Jun 2011 Location: Iowa Posts: 231	Chronic pain- who's got it? Okay met-sisters, I've been on so many therapies that the side effects are catching up with me and its hard to figure out where my latest "chronic" pain is coming from now. I've got horrible pain in my feet and ankles- I think it is neuropathy from my short stent (4 months) on Halaven, but it could also be joint pain from the aromasin (I have bad overall achiness). My feet feel swollen, tired, itchy and hurt even when I'm not on them. The pain is more intense in my right foot, where I had radiation therapy for a pinched nerve from the cancer in my hip. It also could be the cancer itself pressing on something causing bilateral pain. So I begged my oncologist to put me on some stronger pain killers, tylenol with codeine wasn't cutting it. So now I'm on morphine ER and am surviving with 1-2 pills per day. Anyone know anything about chronic pain? Do you think its from neuropathy? Cancer? or the chemo? Do you have chronic pain and if so what do you take for it. Is it related to bone specific disease or other mets? __________________ [B]Kristin Aug 2010: diagnosed stage 3b, 4 mo. after birth of son. 29 yrs old and breastfeeding, ER/PR-, Her-2+ started Neoadjuvant therapy: 4x FEC, 10x abraxane & Herceptin Feb 2011: L mx with recon. Path. showed only DCIS but 4/10+ nodes. March 2011: 6 wks rads. Mother passed, lower back pain. Late May 2011: Bone mets but organs clear; Tykerb, Xeloda, Xgeva. Stopped Herceptin. Implant infected: removed implant. October 2011: Bone progression; Gemzar and Carboplatin & restarted Herceptin. Jan 2012: Progression, re-classified as ER+; Tykerb, Herceptin, Zoladex & Femara. Anti-E is working! May 2012: ovaries out, markers stable but elevated. Cont. Herceptin, Tykerb, Xgeva & Femara. Dec 2012: aromasin Jan 2013: faslodex, herceptin, tykerb Jun: Kadcyla Aug: Rads to hip, then Perjeta, Herceptin & Taxotere Nov 2013: Perjeta, Herceptin, Halaven Early 2014: Affinitor, Aromasin, Perjeta, Herceptin. June 2014: Estradiol, Perjeta, Herceptin Aug 14: Tamoxofin, H & P http://kristin-notdying-blog.blogspot.com/