View Single Post
Old 10-26-2011, 05:55 AM   #25
norkdo
Senior Member
 
norkdo's Avatar
 
Join Date: Jul 2011
Location: ottawa canada
Posts: 367
Re: Finding Little Comfort in the Statistics of Survival

http://www.barbaraehrenreich.com/cancerland.htm

some quotes from the above:

note: below are ehrenbach's words not mine folks:

But in the seamless world of breast-cancer culture, where one website links to another -- from personal narratives and grassroots endeavors to the glitzy level of corporate sponsors and celebrity spokespeople -- cheerfulness is more or less mandatory, dissent a kind of treason. Within this tightly knit world, attitudes are subtly adjusted, doubters gently brought back to the fold. In The First Year of the Rest of Your Life, for example, each personal narrative is followed by a study question or tip designed to counter the slightest hint of negativity -- and they are very slight hints indeed, since the collection includes no harridans, whiners, or feminist militants:

Have you given yourself permission to acknowledge you have some anxiety or "blocs" and to ask for help for your emotional well-being?

Is there an area in your life of unresolved internal conflict? Is there an area where you think you might want to do some "healthy mourning"?

Try keeping a list of the things you find "good about today."

As an experiment, I post a statement on the Komen.org message board, under the subject line "angry," briefly listing my own heartfelt complaints about debilitating treatments, recalcitrant insurance companies, environmental carcinogens, and, most daringly, "sappy pink ribbons." I receive a few words of encouragement in my fight with the insurance company, which has taken the position that my biopsy was a kind of optional indulgence, but mostly a chorus of rebukes. "Suzy" writes to say, "I really dislike saying you have a bad attitude towards all of this, but you do, and it's not going to help you in the least." "Mary" is a bit more tolerant, writing, "Barb, at this time in your life, it's so important to put all your energies toward a peaceful, if not happy, existence. Cancer is a rotten thing to have happen and there are no answers for any of us as to why. But to live your life, whether you have one more year or 51, in anger and bitterness is such a waste . . . I hope you can find some peace. You deserve it. We all do. God bless you and keep you in His loving care. Your sister, Mary."

"Kitty," however, thinks I've gone around the bend: "You need to run, not walk, to some counseling . . . Please, get yourself some help and I ask everyone on this site to pray for you so you can enjoy life to the fullest."

I do get some reinforcement from "Gerri," who has been through all the treatments and now finds herself in terminal condition: "I am also angry. All the money that is raised, all the smiling faces of survivors who make it sound like it is o.k. to have breast cancer. IT IS NOT O.K.!" But Gerri's message, like the others on the message board, is posted under the mocking heading "What does it mean to be a breast cancer survivor?"




These interventions do not constitute a "cure" or anything close, which is why the death rate from breast cancer has changed very little since the 1930s, when mastectomy was the only treatment available. Chemotherapy, which became a routine part of breast-cancer treatment in the eighties, does not confer anywhere near as decisive an advantage as patients are often led to believe, especially in postmenopausal women like myself -- a two or three percentage point difference in ten year survival rates,1 according to America's best-known breast-cancer surgeon, Dr. Susan Love. I know these bleak facts, or sort of know them, but in the fog of anesthesia that hangs over those first few weeks, I seem to lose my capacity for self-defense.






The ultrafeminine theme of the breast-cancer "marketplace" -- the prominence, for example, of cosmetics and jewelry -- could be understood as a response to the treatments' disastrous effects on one's looks. But the infantilizing trope is a little harder to account for, and teddy bears are not its only manifestation. A tote bag distributed to breast cancer patients by the Libby Ross Foundation (through places such as the Columbia Presbyterian Medical Center) contains, among other items, a tube of Estee Lauder Perfumed Body Crème, a hot-pink satin pillowcase, an audiotape "Meditation to Help You with Chemotherapy," a small tin of peppermint pastilles, a set of three small inexpensive rhinestone bracelets, a pink-striped "journal and sketch book," and -- somewhat jarringly -- a small box of crayons. Marla Willner, one of the founders of the Libby Ross Foundation, told me that the crayons "go with the journal -- for people to express different moods, different thoughts. . ." though she admitted she has never tried to write with crayons herself. Possibly the idea is that regression to a state of childlike dependency puts one in the best frame of mind with which to endure the prolonged and toxic treatments. Or it may be that, in some versions of the prevailing gender ideology, femininity is by its nature incompatible with full adulthood -- a state of arrested development. Certainly men diagnosed with prostate cancer do not receive gifts of Matchbox cars.
__________________
fall 2008: mammo of rt breast worrisome so am asked to redo mammo and have ultrasound of rt breast.I delay it til january 2009 and the results are "no cancer in rt breast. phew."
found plum sized lump in right breast the day before my dad died: April 17th 2011. saw it in mirror, while i was wearing a top, examining my figure after losing 10 lbs on dr. bernstein diet.
diagnosed may 10 2011

mast/lymphectomy: june 7 2011, 5/20 cancerous nodes. stage 3a before radiation oncologist during our first mtg on july 15th says he found cancer on the lymph node of my breast bone. Now stage 3b.
her2+++, EN-, PN-. Rt brst tumors:3 at onset, 4.5 cm was the big one
chemos: 3fec's followed by 3 taxotere, total of 18 wks chemo. sept: halfway thru chemo the mastectomy scar decides to open and ooze pus. (not healed before chemo) eventually with canasten powder sent by friend in ny (illegal in canada) it heals.
radiations:although scheduled to begin 25 january 2012, I am so terrified by it (rads cause other cancers) I don't start til february, miss a bunch, reschedule them all and finally finish 35 rads mid april. reason for 7 extra atop the 28 scheduled is that when i first met my rads oncologist he said he saw a tumor on the lymph node of my breastbone. extra 7 are special kind of beam used for that lymphnode. rads onc tells me nobody ever took so long to do rads so he cannot speak for effectiveness. trials had been done only on consecutive days so......we'll see.....
10 mos of herceptin started 6 wks into chemo. canadian onc says 10 mos is just as effective as the full yr recommended by dr. slamon......so we'll see..completed july 2012.
Sept 18 2012: reconstruction and 3 drains. fails. i wear antibiotic pouch on my job for two months and have 60 consecutive days visiting a nursing centre where they apply burn victims' silver paper and clean the oozing infection daily. silicone leaks out daily. plastic surgeon in caribbean. emergency dept wont remove "his" work. He finally appears and orders me in into an emergency removal of implant. I make him promise no drains and I get my way. No infection as a result. Chest looks like a map of Brazil. Had a perfectly good left breast on Sept 17th but surgeon wanted to "save another woman an operation" ? so he had crashed two operations together on my left breast, foregoing the intermediary operation where you install an expander. the first surgeon a year earlier had flat out refused to waste five hours on his feet taking both boobs. flat out refusal. between the canadian health system saving money and both these asses, I got screwed. who knows when i can next get enough time off work (i work for myself and have no substitute when my husband is on contract) to get boobs again. arrrgh.


I have a blog where I document this trip and vent.
www.nora'scancerblog.blogspot.com . I stopped the blog before radiation. I think the steroids made me more angry and depressed and i just hated reading it anymore
norkdo is offline   Reply With Quote