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Old 07-03-2011, 05:37 AM   #4
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Re: The Voice of the Patient: Time To Bring Out the Muzzle?

The journalist is forgetting one basic fact (he obviously is lacking of empathy but not of bad taste: 'matastazing their views'..): a patient is not a statistics!

And indeed if the drug works for even a few, these few will want it, and, who should be in their way to stand in front of them and tell them that statistically they should be dead so their voice should not be heard? This news reporter would also prescribe getting rid of costly neo natal-units because hey after all we have over population..and statistically these babies will have problem in the future so why bother.. where do you stop rationality?

what should be looked at is analyzing the tumours and responses of people for whom it is working so as to be more specific in the future whom should benefit.. in the meantime I like to think that human being are acting from their heart not just their head and therefore we hear people crying for help even if it does not make statistical senses.
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama

Last edited by fullofbeans; 07-03-2011 at 05:45 AM..
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