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CourtneyL · 06-23-2009, 05:23 PM

Hoping you do well on the T/X combo, Jessica! I got the acne thing two a few months into Tykerb and it ended up going away on its own. I got the rash twice and both times the Suki oil worked like magic.

Another suggestion that I just received from the nutritionist at my onc's office is to take Glutamine for the Xeloda digestion-related side effects. I add a spoonful to some juice in the morning and swish it in my mouth to help with mouth sores and then drink it up to help my digestive tract get back to normal. I really think it helps. B6 was another suggestion my nutritionist gave me and I've added that to my vitamin cocktail too.

Best to you!

06-23-2009, 05:23 PM	#11
CourtneyL Senior Member Join Date: Aug 2008 Location: San Francisco Posts: 260	Hoping you do well on the T/X combo, Jessica! I got the acne thing two a few months into Tykerb and it ended up going away on its own. I got the rash twice and both times the Suki oil worked like magic. Another suggestion that I just received from the nutritionist at my onc's office is to take Glutamine for the Xeloda digestion-related side effects. I add a spoonful to some juice in the morning and swish it in my mouth to help with mouth sores and then drink it up to help my digestive tract get back to normal. I really think it helps. B6 was another suggestion my nutritionist gave me and I've added that to my vitamin cocktail too. Best to you! __________________ 4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++ April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response! Sept 08-Dec 08: Herceptin +Zometa for maintenance. Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait. April 09: Gamma Knife 10 brain mets, add Xeloda. Sept 09: Gamma Knife to 1 brain met. Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa. May 10- Sept 10: HER2 Vaccine Trial Sept 10: Add Tykerb for more brain mets. Oct 10: Gamma Knife to 7 brain mets. Dec 10: Switch from Zometa to Denosumab. Jan 11: Gamma Knife to 3 brain mets. March 11: Gemzar/Herceptin for lung/bone progression. April 11: More brain mets - Intrathecal Herceptin June 11: Ixempra/Herceptin for lung, soft tissue progression. Aug 11: Gamma Knife Sep 11: Abraxane/Herceptin Future: NED Send me a PM if you'd like to follow my journey on Caringbridge.