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Old 03-30-2015, 06:11 PM   #14
Heathcliff4
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Join Date: Feb 2014
Posts: 52
Re: In Praise of Perjeta

Congratulations!! It's an amazing combination. I had 4 rounds of Perjeta with Herceptin and may be the only person on this board who had it in the adjuvant setting for stage 2 disease. Long story, but I was able to convince the docs at UCSF to approve it in my case due to a cancerous lymph node missed in surgery at a different hospital. The node would allow them to "study" the effects of the drugs and placed me in between neoadjuvant ands adjuvant. Pet scan at the end of chemo/P and H and no evidence of disease.
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Kathryn Ellman

8/2013 Diagnosed age 42 with boys aged 2.5 and 6, Stage 11b, 1 cm her2+++, 30% ER positive, 5% PR positive, Rt Breast. Also DCIS in second spot of rt breast, high grade.
9/2013 Bilateral mastectomy, 3 nodes positive
10/13 Started AC/TH, Perjeta and Herceptin
1/14 Finished Chemo
3/14 Radiation, 5 weeks
4/14 Started Tamoxifen
6/14 Discontinued Tamoxifen due to extreme joint pain, exhaustion and depression
6/14 Started Exemestane and Zolodex shots to suppress ovaries
11/14 Finished Herceptin
11/14 Discontinued Exemestane due to similar side effects as Tamoxifen.
1/15 Reconstruction
3/15 CT Scan (routine) shows possible liver mets.
3/15 PET/CT scan shows no mets - huge sigh of relief
4/15 Began Letrozole. Knee and hip joint discomfort but minimal. Otherwise, knocking on wood - so far, so good!
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