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I wanted to add that I know a woman (a young woman) who only discovered her bone mets after her hip broke and she needed a total hip replacement, which was the scenario that Brenda's onc referred to.
To Debbie, what do you say to her. How do you argue that finding her mets early (say as just a spot on her hip that showed up on a routine bone scan) wouldn't have improved her quality of life.
Is her case rare? yes it is. But it was also rare for me to get breast cancer at 37, with no family history. I get tm and routine scans because while it is rare, I do not want to be like this woman. I have three little kids and I don't want to be in a wheelchair for the rest of my life.
I think there are more onc's like Brenda's out there and it will only be a matter of time before research and studies reflect this newer thinking on catching mets early.
But until then, I am looking out for myself.
Laurie
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