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Hi Cheryl,
taking it every night at 10:30 sounds great! And I'm glad that you have very minor side effects. I understand Tykerb and Herceptin have a synergistic effect. They'll knock the socks off those nodes in no time!
I'm taking Tykerb together with Xeloda so I have to take the Xeloda with food (dinner) and most of the time it is quite late by the time I get myself to take the Tykerb - like today at 2 am....
It even happened maybe twice (in five weeks) that I could not get myself to take it at night, left it to next morning, but then I switched back to evening, I can handle it somehow better when I'm asleep. (This way I left out a day or so, but I don't feel like I have to be perfect.)
So far I had manageable side effects, but now the tiredness is hitting me, hope to recover during my week off the Xeloda!
Stay strong Cheryl!
Hugs and prayers,
Odette
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May 18, 2006 Age 52,
Diagnosed infiltrating ductal carcinoma
er/pr- HER2 + 3.9 by FISH
June-August 2006 AC chemo
August-October 2006 Taxotere + Herceptin
November 18, 2006 Mastectomy 16 involved lymph nodes
Jan 2, 2007 start radiation
Stage IV, Jan 12, 2007 recurrence in cervical lymph nodes while on Herceptin, stopped Herceptin
Rad oncologist extended the radiation field, good response
Started Tykerb Xeloda on beginning of May 2007
Progression to lungs and conglomerate lymphadenopathy July 2007
Undecided about next treatment
'One does not get to choose one's adventures'
I'm experimenting with my diet, using green tea, flax seed curry and olive oil
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