HER2 Support Group Forums - View Single Post - Will be 8yrs NED from Stage IV in April

Coming up behind you, Kim, Kai and Diana - currently 7 years stage IV. But not forgetting all those who haven't made it so far. Often think somebody should be studying why some of us continue to thrive.
Best wishes to all..... Pam

__________________
Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.

04-29-2019, 12:55 AM	#13
Pamelamary Senior Member Join Date: Apr 2012 Location: Melbourne, Australia Posts: 494	Re: Will be 8yrs NED from Stage IV in April Coming up behind you, Kim, Kai and Diana - currently 7 years stage IV. But not forgetting all those who haven't made it so far. Often think somebody should be studying why some of us continue to thrive. Best wishes to all..... Pam __________________ Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+, C-erbB-2 status 3+. Clear margins, no nodal involvement. Radiotherapy, i year Tamoxifen, 4 years Arimidex. Rediagnosed 2012: Multiple bone metastases. 3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo. 5/12:Unexpected development of numerous bilateral liver mets. Came off trial. Started Docetaxol/ Herceptin + Zometa. 8/12:Bones stable +major regression in liver (!) 9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers! Changed to Denosumab. 11/12: Scan shows stable - yay! 11/13: Still stable :-) !!! 1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly. 2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.