HER2 Support Group Forums - View Single Post - Time for a change

Carolyns · 05-30-2009, 12:13 PM

Hi All,

Thank you for your support. I have had Tykerb w/ Herceptin and that held me for 3 months. I have also had all of the hormonals. As for TDM1. At first I was not able to get in because I had not had Xeloda. Now that I am failing Xeloda I can not get in because the open trials require that you have NOT had Xeloda. Frustrating! That is one reason that I think that there should be a compassionate care mandate for stage IV entry to trials. I mean what could it hurt, really?

My doctor is checking to see if there are any current open TDM1 trials. I think that I still qualify for the Heat Shock Protein trial.

I am so lucky to have responded to date and to be able to maintain my life while living with cancer in treatment. I want to continue to do so until the cure.

Thanks again for your support. It means so much.

Love, Hope, Peace, Carolyn

05-30-2009, 12:13 PM	#14
Carolyns Senior Member Join Date: Jun 2006 Location: South Florida Posts: 477	Hi All, Thank you for your support. I have had Tykerb w/ Herceptin and that held me for 3 months. I have also had all of the hormonals. As for TDM1. At first I was not able to get in because I had not had Xeloda. Now that I am failing Xeloda I can not get in because the open trials require that you have NOT had Xeloda. Frustrating! That is one reason that I think that there should be a compassionate care mandate for stage IV entry to trials. I mean what could it hurt, really? My doctor is checking to see if there are any current open TDM1 trials. I think that I still qualify for the Heat Shock Protein trial. I am so lucky to have responded to date and to be able to maintain my life while living with cancer in treatment. I want to continue to do so until the cure. Thanks again for your support. It means so much. Love, Hope, Peace, Carolyn