HER2 Support Group Forums - View Single Post - What can we do about the delay of TDM-1

Chelee · 09-22-2010, 04:02 AM

Trish,
I so agree with your comments about Joe and his post. I can't help but think of him every single day! If he was here he would be ALL OVER this T-DM1 battle for us...he had the connections and would of known exactly who to talk too.. and what we all should be doing. So many of us were depending on TDM1. I just get angry when I think about how we are denied access to TDM1. It makes no sense at all to have us run through toxic chemo's before we can have a targeted therapy. Are we still going to do something about this TDM1 issue? I know it's so hard when many of us are seeing doctors, doing chemo and trying to keep up with all life hands us...but I hope some how we can make a difference for the sake of so many that need this drug now...or will in the very near future.

Schoonder,
Great link...it says it all. Thanks for sharing that.

Chelee

09-22-2010, 04:02 AM	#58
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: What can we do about the delay of TDM-1 Trish, I so agree with your comments about Joe and his post. I can't help but think of him every single day! If he was here he would be ALL OVER this T-DM1 battle for us...he had the connections and would of known exactly who to talk too.. and what we all should be doing. So many of us were depending on TDM1. I just get angry when I think about how we are denied access to TDM1. It makes no sense at all to have us run through toxic chemo's before we can have a targeted therapy. Are we still going to do something about this TDM1 issue? I know it's so hard when many of us are seeing doctors, doing chemo and trying to keep up with all life hands us...but I hope some how we can make a difference for the sake of so many that need this drug now...or will in the very near future. Schoonder, Great link...it says it all. Thanks for sharing that. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.