Re: Calling all stage iv sisters
Hi.. I have not posted in a long time but do keep up reading on the site. I just want to say I have been stage 4 from my original diag back in 10/04; I am currently on the TDMI compassionate use trial in VA, which happens to be the oncology group I use. I had a miracle happen right from the very first time I started the regiment. My one tumor which was partially above my pec area about 1/2" completely disappeared - this gave me so much hope that I knew the all the nodules in both lungs were going to be gone. Needless to say when I got my first Pet Scan I was NED .... !!!! I have not been NED in years .... I know we never know which combination will work but I am thankful through prayer this is the path I took. I am relieved that I can continue this trial until further notice...
Debbie
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dx stage 4 ... 11/04
3.2 cm mass breast & liver mets..
her2 +++ ; er- ; pr -;
11/04 treated with hercp, taxol & carboplatin - every 3 wks
3/05 ned - stopped chemo; hercp only
5/05 reoccurence left breast
6/05 added navelbiene w/ hercp every other wk
7/05 mascetomy
12/05 ned ; same regiment- every 3 wks
3/06 & 7/06 ned
9/06 stopped navelbiene.. hercp only.. every 3 wks;
10/06 pet scan shows positive lymph node in pec
12/06 PET no change;
4/07 scan showed 4 abnormal nodes in right pec area ... these have increased in activity since last scan... will start back on weekly navelbeine & hercp
7/07 PET done ..this time it showed new nodules in both right & left lung area as well as increased activity in pec area..
8/07 started Taxol & Carboplatin with Hercp every 3 wks
10/07 PET done ...Great Report ... NED ....
11/07 continue with Hercp every 3 wks & do Taxol & Carboplatin every 6 wks
4/09 still on same regiment; 1 positive node in left lung and right pec area
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