[DogLover]

I was also told not to wear the compressions sleeve at night. That is what I was told by the supply company therapist who measured me for my compressions sleeve. However, a previous lymphedema therapist told me I should wear my compression sleeve to bed. I have also been told not to lift over 15 pounds with this arm and then told that is no longer the latest treatment for lymphedema. It seems challenging to get good, evidenced based information.

I am a bit prostrated because I only had 3 nodes removed, and they were all negative. I still wound up with this complication. Ugh.

I have just been measured for a custom compression sleeve and glove that I will wear during the day, and a I will be getting a sleeve to wear at night that looks like an oven mitt. I is a big mitt that will go all the way up to my arm pit and this is what I will sleep in.

I also just got a compression bra! It is a bra that has a pouch for the compression pad. It is really working well to soften the tissue and hopefully will help to reduce the size of the breast on this side. (I obviously had a lumpectomy). The breast with the lumpectomy is AT LEAST 2 sizes larger than the other and I can't find a bra that fits on both sides. I am tired of wearing sports bras. I am hoping that this will reduce the breast to a point where I can wear a normal bra.

I am almost one year out from diagnosis. I have been asking about my enlarged breast most of that time. I have even asked my surgeon and oncologist about possible breast reduction surgery. They said the lymphedema would just come back. I back. I have asked 3 lymphedema specialists (see different people on different days) who are certified as lymphedema specialists about my enlarged breast. After all this it is the supply company that tells me about this product that is available (compression bra). It is hard to find a place to get our answers when we have this diagnosis. We just have to keep asking!