[Ellie F]

Hi Fob
I think you're right. With HIV they used a number of celebrities also to push the issue forward (thinking Elton John for one!). It seems we also have celebrity bc survivors and supporters but there focus seems to be fundraising (which is good i know) rather than political activism.I think the issue of older and ground down by treatments also rings true.
It is very frustrating to come to terms with the delay once drugs are approved in the States. You would think in this global economy they could synchronise approval wouldn't you! I am also concerned that as the economy remains in a poor state NICE will be in no hurry to approve expensive treatments and the investment in research may diminish.

I think your idea of checking the status of your mets is a really good idea especially in the light of what the research has showed. Would you onc go along with this? I know it was only when I had a second opinion that this happened for me as I was told it's expensive.

Ellie