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Old 06-05-2007, 09:22 AM   #1
Joy
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Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
Hi

Hello everyone, I hope you are all hanging in there okay. I'm really struggling with Sandy's passing. It just seemed so fast. I mean it wasn't long ago that she posted with her usual cheer despite the struggles and then it was over.

I was on a mini vacation in Estes Park with friends and had a great time, but that news was hard to come back to. I thought about her the whole time I was gone.

I am doing pretty well on xeloda/tykerb. This is my week off xeloda. I have not had many side effects; A little burning in the hands and feet, a little mouth soreness. I know that will increase as time goes on. I'm not sure if I have a rash exactly, but my skin feels drier, especially around my nose and mouth and under my eyes. I normally have pretty 'normal' skin. I think it might be the rash because it is so unusual for me to have the dry patches and very few things have really moisturized enough. I'll be curious to see if it is a passing thing. I just hope this is working.

I'm feeling a little down again and just so wish for the miracle.
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with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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