HER2 Support Group Forums - View Single Post - Trastuzumab-MCC-DM1 trial

chrisy · 02-11-2008, 11:58 AM

OK, I'm bored, except for every 15 minutes when they have to take my vitals. So far I am still breathing and, except for the time when I had just gotten back from running to the bathroom, my B/P is nice and low. Some change from the Avastin days, plus I think taking the train as I did this morning is a LOT less stressful even tho I had to get up while it was still dark.

The stinging has stopped, after running more saline with the infusion and putting a warm pack on the infusion site for a few minutes. Had me a bit worried because I REALLY want this drug to work, and It probably won't work as well if I'm only looking at it and not actually getting it in my veins.

My hubby is coming to sit with me for this first infusion, since I wasn't sure how I would feel and plus, it's a really long day (90 min infusion followed by 90 minutes of observation then a blood draw 2 1/2 hours after that!). He should be here soon, so I can stop boring you with endless drivel about my treatment!

Somebody stop me!!!!!!
I just took my own temperature and oxygen saturation rate, but the time they let me out of here I'll be accessing my own veins for infusion!

02-11-2008, 11:58 AM	#5
chrisy Senior Member Join Date: Sep 2005 Location: Central Coast, CA Posts: 3,207	first infusion play-by-play OK, I'm bored, except for every 15 minutes when they have to take my vitals. So far I am still breathing and, except for the time when I had just gotten back from running to the bathroom, my B/P is nice and low. Some change from the Avastin days, plus I think taking the train as I did this morning is a LOT less stressful even tho I had to get up while it was still dark. The stinging has stopped, after running more saline with the infusion and putting a warm pack on the infusion site for a few minutes. Had me a bit worried because I REALLY want this drug to work, and It probably won't work as well if I'm only looking at it and not actually getting it in my veins. My hubby is coming to sit with me for this first infusion, since I wasn't sure how I would feel and plus, it's a really long day (90 min infusion followed by 90 minutes of observation then a blood draw 2 1/2 hours after that!). He should be here soon, so I can stop boring you with endless drivel about my treatment! Somebody stop me!!!!!! I just took my own temperature and oxygen saturation rate, but the time they let me out of here I'll be accessing my own veins for infusion! __________________ Chris in Scotts Valley June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?" 9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++ 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response! 04/05 - 4/07 Herception every 3 wks, Continue NED 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin 01/08 Progression in liver 02/08 Begin (TDM1) trial 08/08 NED! It's Working! Continue on TDM1 02/09 Continue NED 02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver 07/11 - 11/11 Herceptin/Xeloda -not working:( 12/11 Begin MM302 Phase I trial - bust:( 03/12 3rd times the charm? AKT trial 5/12 Scan shows reduction! 7/12 More reduction!!!! 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!) 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go. 2/13 Gemzar/Carbo/Herceptin - no go. 3/13 TACE procedure Last edited by chrisy; 02-11-2008 at 12:08 PM..