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Re: Please post your two cents on Herceptin "side effects" real or perceived!
I finished Taxol at the end of July and I am now on weekly treatments of Herceptin. I am glad to be feeling myself again but have noticed some side effects. I am having joint pains in my hands at night. It hurts from my knuckles to the top of my fingertips. Has anyone had this?
I also have leg/joint pains when I stand up - I feel like a 90 year old woman sometimes! It doesn't last long and I am able to workout on my treadmill everyday but it has been a little bit of a pain. I am also experiencing weight gain around my abdominal area. Real happy about this one!!
Other than that, I have nothing else to complain about. I'm still on Tykerb and the diarrhea has tapered off. Hair is slow growing but all is coming back on my eyebrows/eyelashes too. Awaiting lumpectomy surgery on August 31st so will be happy to go to every 3 weeks of Herceptin rather than weekly.
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11/17/10 - Diagnosed with 4.5cm tumor in right breast, IDC, Stage 2, Nuclear grade 2, ER+ PR+ HER2+
12/13/10 - Lymph node biopsy - negative
12/28/10 - Started neo-adjuvant treatment along with clinical trial with 4 rounds of AC chemo every 3 weeks
3/15/11 - Began weekly Taxol/Herceptin infusions along with 750mg of Tykerb taken by mouth daily
6/28/11 - Finished last cycle of Taxol
7/27/11 - Breast MRI shows tumor has dissolved, remarkable reaction to chemo
8/31/11 - Lumpectomy, Sentinel Node biopsy. Node negative, clear margins, 7mm of cancer left over from chemo.
10/05/11 - Started radiation, 5 days a week for 7 weeks.
11/8/11 - Finished radiation
3/21/12 - Last Herceptin!
3/26/12 - Port removed!
Tamoxifen for 5 years
8/4/15 - Hysterectomy & bilateral salpingo-oophorectomy. Due to large fibroids. No cancer!
8/8/15 - Started Arimidex
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