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Re: Port Problems
I am so sorry to hear you had to go through all that. What a nightmare for you. How long ago was this port installed before this happened? That is just awful and I can only imagine how scary that must of been for you. It's not like we don't have enough to go through with this nasty disease. I am glad they got it out and taken care of though without further complications. I have a power port in my chest and have worried about it moving, or coming apart. Especially since that's the same side I sleep on at night. I lay right on my right side and that is exactly where the catheter line runs over my clavical to my jugular vein. I'm always afraid it could get pinched off, twisted or moved in some way.
I will assume they can't access your veins till you can get a new one installed? The blood thinners will take care of it but I realize that is the last thing you wanted to deal with now. Try to hang in there as hard as I know that is to do.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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