HER2 Support Group Forums - View Single Post - Decatron & Hyperbaric Oxygen Therapy (HBOT)

krisvell · 07-21-2011, 05:09 AM

Hi All,
I haven't posted for a while but thought it's time to share. Since the necrosis, I started taking Decatron and dealing with the side effects (tapering down from 16mg). My extent of exercise; which is my fun thing to do is walking a few laps around my house. My left side has nerve damage so I am taking pain meds to control that Hopefully. there's light at the end of the tunnel. I'm pretty down right now.

I've read a lot on this site on Decatron side effects but if anyone wants to share advice to me, please send it along. I want to feel better.

Had a full Spine MRI and nothing new; thank god for that. Going for Brain MRI and hopefully that will show no progresssion and hopefully some improvement. Pray, pray, pray for that.

There aren't many treatments for necrosis but there are a few; Avastin and HBOT. After several consults with Neuro Oncologists, I am going to start the HBOT. There isn't a lot of research on this, there are studies that have has shown improvements. Maybe I'll be the trailblazor to make pubmed. If all goes well, I'll start next week.

Love,

Kris...

07-21-2011, 05:09 AM	#1
krisvell Senior Member Join Date: Sep 2009 Location: Kensington, CT Posts: 394	Decatron & Hyperbaric Oxygen Therapy (HBOT) Hi All, I haven't posted for a while but thought it's time to share. Since the necrosis, I started taking Decatron and dealing with the side effects (tapering down from 16mg). My extent of exercise; which is my fun thing to do is walking a few laps around my house. My left side has nerve damage so I am taking pain meds to control that Hopefully. there's light at the end of the tunnel. I'm pretty down right now. I've read a lot on this site on Decatron side effects but if anyone wants to share advice to me, please send it along. I want to feel better. Had a full Spine MRI and nothing new; thank god for that. Going for Brain MRI and hopefully that will show no progresssion and hopefully some improvement. Pray, pray, pray for that. There aren't many treatments for necrosis but there are a few; Avastin and HBOT. After several consults with Neuro Oncologists, I am going to start the HBOT. There isn't a lot of research on this, there are studies that have has shown improvements. Maybe I'll be the trailblazor to make pubmed. If all goes well, I'll start next week. Love, Kris... __________________ 06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++ Nottingham 6/9 - Grade 2 5.2cm, several nodes 06/23/09 - Neoadjuvant - TCH Herceptin til June 10/07/09 - Finished Chemo 10/27/09 - Mastectomy RB Path Report: RB No residual tumor pCR, 2 of 15 pos - .5mm largest micromets 12/18/09 - Radiation started (28) 02/05/10 - Finished Radiation 01/11/10 - Started Femara 06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best. 11/15/10 - Started Walter Reed BC Vaccine trial at 1/04/11 - Sibley Mem. Had to withdraw due to met 01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm 02/03/11 - Gamma Knife (2 fracts to minmize necrosis) 03/01/11 - Gamma Knife 6/11 - Necrosis 7/11 - Necrosis stopped & Tumor progression 8/11 = Now think it's really necrosis 9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking. 12/11 - Necrosis gone AVASTIN worked. 12/11 - Bone &CT found Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!