HER2 Support Group Forums - View Single Post

Andrea Barnett Budin · 12-14-2015, 02:50 PM

Thank you, Joan!

Yes, Corrie has all that you say.

And yes, she was in San Antonio!!!!

Who wasn't????

Every onc in America anyway. I note that time period in Dec. for yrs, cause I can't count on getting any immediate help if need be. No joke.

Having my scans tomorrow. Was thinking to make my Dec. scans further from Christmas craziness, but SABCS -- so I moved to this Tues.

Hoping for stable. Expecting stable.

I will check out all you say, Joan.

Wonderful.

We need to keep one another informed. We must keep sharing! Sharing is caring.

Don't just lurk. Don't think what you have to say isn't really interesting.

I swear -- it is always interesting. Adds to our knowledge knowing one another's experiences. Makes us smarter and therefore more empowered!!

12-14-2015, 02:50 PM	#7
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Re: The metastatic breast cancer alliance Thank you, Joan! Yes, Corrie has all that you say. And yes, she was in San Antonio!!!! Who wasn't???? Every onc in America anyway. I note that time period in Dec. for yrs, cause I can't count on getting any immediate help if need be. No joke. Having my scans tomorrow. Was thinking to make my Dec. scans further from Christmas craziness, but SABCS -- so I moved to this Tues. Hoping for stable. Expecting stable. I will check out all you say, Joan. Wonderful. We need to keep one another informed. We must keep sharing! Sharing is caring. Don't just lurk. Don't think what you have to say isn't really interesting. I swear -- it is always interesting. Adds to our knowledge knowing one another's experiences. Makes us smarter and therefore more empowered!! __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...