Thread: Splitting nails
View Single Post
Old 04-25-2015, 08:54 AM   #12
vqtilley
Member
 
Join Date: Mar 2015
Posts: 13
Re: Splitting nails

Here's one unusual experience: My nails on Herceptin/Arimidex had become very thin, flaky and ridiculously fragile, always splitting and shredding, with pale dry ridgy surfaces and in some spots actually separating between nail & nail bed. They often split painfully up into the quick and I couldn't use them for anything. One day the look suddenly reminded me of a tropical nail fungus I had ages ago. As an experiment I tried tea tree oil, which after 2 weeks did nothing, but then I tried an over-the counter nail fungus paint "Anti-Fungal Liquid/Undecylenic Acid" (Walgreens) and after 2 weeks they improved modestly but noticeably! I then asked my GP for Jublia (prescription anti-fungal) and after six weeks my nails have smoothed, strengthened, with color improved, holding their shape & not shredding at all! I do keep them very short and quickly smooth any rough edges but I can actually use them again for light things in the kitchen, etc. and they look and feel FAR better. I'm wondering if maybe our meds in some cases make us vulnerable to nail fungus? It's the kind of thing our med oncs wouldn't be thinking about or testing for, no? Anyway, the Undecylenic Acid isn't expensive and might be worth a shot. If you try it, I'd suggest using it every evening after you're in bed and have done your last stuff with water, and include toenails. Be patient, give it a couple of weeks and share results? Might be a fluke in my case, but would be great if we find wider benefits.
__________________
Feb 2012: diagnosed with 1 cm lesion rt breast, DCIS left breast, Stage IV ER+/HER2+
Apr 2012: bilateral partial excisions; confirmed met to left proximal femur, long gamma nail inserted to stabilize femur:
May 2012: radiation to femur: chemo with Trastuzumab + taxane.
July 2012 thru Mar 2015: started maintenance regime Herceptin+Arimidex+Denosumab, NED
May 2014: recurrence in right acetabulum: 15 fractions radiation
Jan 2015: lesion in left cerebellum: resection & gamma knife treatment
Mar 2015: major general progression; small mets confirmed in rt axilla, rt breast, T7 vertebra, possible met as isolated spiculated pulmonary nodule left lung[LIST][*]27 Mar 2015: start Kadcyla, discontinue aromotase inhibitors; within two weeks axilla/rt breast lesions are shrinking noticeably[*]18 April: resume letrozole [*]May: all lesions disappeared or dormant[*]June - discontinue Kadcyla due to low platelets[*]Aug & Nov 2015 MRI brain/spinal scans all negative for CNS disease: no recurrence to date
Fall 2015 - stereotactic radiation to lingering T3 lesion to relieve pain; 90% effective within weeks
July 2019 - discontinued Letrozole due to side effects
April 2020 - short course steretactic radiation to 2 cm lesion in upper left lung; subsequent scan finds it reduced
Mar 2021 - 6.5 cm mass found in left lung; FISH finds it is PR-, ER- and strongly HER2+.
16 April 2021 - Resume Kadcyla.
vqtilley is offline   Reply With Quote