HER2 Support Group Forums - View Single Post - What can we do about the delay of TDM-1

Chelee · 09-13-2010, 02:14 AM

I posted to this thread & lost it. Ugh! Too late to start over now..have an early morning appt with onc/Herceptin.
But I want to keep this thread up at the top...it's such an important issue we have to stay on top of. I'm so impressed with all of you. Lots of great idea's you have all come up with.
I plan on writing my letter this wk...then figure out which places to send it too. Like Elaine asked...are we going to write up a petition for all to sign on top of these other ideas?

We need to be heard...and with what I've read here so far I think we can make it happen.

Chelee

09-13-2010, 02:14 AM	#50
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: What can we do about the delay of TDM-1 I posted to this thread & lost it. Ugh! Too late to start over now..have an early morning appt with onc/Herceptin. But I want to keep this thread up at the top...it's such an important issue we have to stay on top of. I'm so impressed with all of you. Lots of great idea's you have all come up with. I plan on writing my letter this wk...then figure out which places to send it too. Like Elaine asked...are we going to write up a petition for all to sign on top of these other ideas? We need to be heard...and with what I've read here so far I think we can make it happen. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.