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Believe51 · 07-07-2009, 11:47 PM

Just thinking outloud with you. Why did Mom stop the Ixempra, were the side effects too rough for her?? Dosage can be adjusted if need be and has proven thus far to be a great drug. Ed is on the Ixempra alone and it is unknown at this point if it passes the BBB, a sister drug to Ixempra does. Anyone I know that is on this drug also uses something else or adds Herceptin to the mix. They also have mets systemically in other areas and not the brain. Ed has the disease controlled in the body for the most part, it is his brain that is severely affected. If this drug does pass the BBB I will be the first to know and will blast the marvelous news here.

I will talk to you soon. Just wanted to ask about the Ixempra. I even think I will have Ed's dosage changed because he is soooo so frail right now.>>Believe51

07-07-2009, 11:47 PM	#8
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	Just thinking outloud with you. Why did Mom stop the Ixempra, were the side effects too rough for her?? Dosage can be adjusted if need be and has proven thus far to be a great drug. Ed is on the Ixempra alone and it is unknown at this point if it passes the BBB, a sister drug to Ixempra does. Anyone I know that is on this drug also uses something else or adds Herceptin to the mix. They also have mets systemically in other areas and not the brain. Ed has the disease controlled in the body for the most part, it is his brain that is severely affected. If this drug does pass the BBB I will be the first to know and will blast the marvelous news here. I will talk to you soon. Just wanted to ask about the Ixempra. I even think I will have Ed's dosage changed because he is soooo so frail right now.>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!