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suzan w · 02-27-2007, 09:46 AM

Sorry to hear you are having such a tough time! I did not have the same type of chemo as you...I had Adriamycin/Cytoxan...and had every symptom in the book! In fact my oncologist cut it short by 2 treatments. It was after surgery that I had chemo so was not trying to shrink a tumor, like you are...I did chemo because of the agressive type of cancer (invasive lobular which spreads in the cells as well as through the lymph nodes) and the Her2 status...my onc. believed that I should have chemo then Herceptin. When I did herceptin it had not yet been approved by the FDA for use in early stage breast cancer, so she prescribed it "off lable" and I was lucky that my insurance covered it.
Sounds like you are taking good care of yourself...EMEND worked wonders for me too...I ate alot of mashed potatoes and scrambled eggs but nothing tasted right! Good Luck!!!

02-27-2007, 09:46 AM	#7
suzan w Senior Member Join Date: Sep 2005 Location: Naples FL Posts: 1,744	Sorry to hear you are having such a tough time! I did not have the same type of chemo as you...I had Adriamycin/Cytoxan...and had every symptom in the book! In fact my oncologist cut it short by 2 treatments. It was after surgery that I had chemo so was not trying to shrink a tumor, like you are...I did chemo because of the agressive type of cancer (invasive lobular which spreads in the cells as well as through the lymph nodes) and the Her2 status...my onc. believed that I should have chemo then Herceptin. When I did herceptin it had not yet been approved by the FDA for use in early stage breast cancer, so she prescribed it "off lable" and I was lucky that my insurance covered it. Sounds like you are taking good care of yourself...EMEND worked wonders for me too...I ate alot of mashed potatoes and scrambled eggs but nothing tasted right! Good Luck!!! __________________ Suzan W. age 54 at diagnosis 5/05 suspicious mammogram-left breast 5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++ 6/14/05 bilateral mastectomy, node neg. all scans neg. Oncotype DX-high risk 8/05-10/05 4 rounds A/C 10/05 -10/06 1 yr. herceptin arimidex-5 years 2/14/08 started daily self administered injections..FORTEO for severe osteoporosis 7/28/09 BRCA 1 negative BRCA2 POSITIVE 8/17/09 prophylactic salpingo-oophorectomy 10/15/10 last FORTEOinjection RECLAST infusion(ostoeporosis) 6/14/10 5 year cancerversary! 8/2010-18%increase in bone density! no further treatments Oncologist says, "Go do the Happy Dance" I say,"What a long strange trip its been" 'One day at a time' 6-14-2015. 10 YEAR CANCERVERSARY! 7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use 6-14-16. 11 YEAR CANCERVERSARY!! 7-20-16 Prolia injection for severe osteoporosis 2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL. 6-14-17 12 YEAR CANCERVERSARY!! still suffering from CIU. 4 hospitilizations in the past year as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!! 6-14-18 13 YEAR CANCERVERSARY!! NED!!