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All stage 3ers
Ok, this is what caught me eye at San Antonio.There was a slide on the book we got, but they did not talk about it. They were talking about Tykerb.It said:
Stage 3 patients are possible CURABLE (>75% relapse)
I don't know what the 75% relapse means. but i emailed my oncologist to ask.I just saw the curable part and wanted to cry. I don't know why they didn't talk about it though. when my oncolgist emails me back i will let you all know. I don't think they will let us Herceptin use women in the early study. They want to prove that Tykerb is just as good as Herceptin in early use. Our best bet us to get it off label. I'm hoping medicare will pay for it. If our insurance companies don't want to pay for it, i wonder if there is a lawyer on line with us that could tell us if there is anything we could fight for. I really believe we all need to fight for this. What is everyone else's opinion?
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Michele Ulmer
dx: August 2003 stage 3b 35 pos nodes ER/PR neg Her+
4 AC 12 weekly taxol
one year Herceptin in trial
35 rad tx
vaccine trial Seattle
NED
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