HER2 Support Group Forums - View Single Post - Seeking advice from Vaccine trial participants

Becky · 03-04-2013, 05:55 PM

GM-CSF is also known by its brand name, Leukine. Go on www.leukine.com

Leukine (only the first dose) can give extreme fatigue side effects and even a hive at the injection site. I took Leukine instead of Neulasta (or Neupogen) as my white blood cell booster because it boosts the dendrites (as well as the other white blood cell components such as monocytes, lympocytes and the important neutrophils). The dendritic effect is what makes vaccines work and I was using it alone to try to self vaccinate during chemo. I had such extreme fatigue (only with the first dose) that I could not even move. This is extreme and at least they are making you stay 2 hrs just in case. You can read about Leukine online and you should so you know what to expect. I did not do a vaccine trial but I did do 87 doses of Leukine.

03-04-2013, 05:55 PM	#4
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	Re: Seeking advice from Vaccine trial participants GM-CSF is also known by its brand name, Leukine. Go on www.leukine.com Leukine (only the first dose) can give extreme fatigue side effects and even a hive at the injection site. I took Leukine instead of Neulasta (or Neupogen) as my white blood cell booster because it boosts the dendrites (as well as the other white blood cell components such as monocytes, lympocytes and the important neutrophils). The dendritic effect is what makes vaccines work and I was using it alone to try to self vaccinate during chemo. I had such extreme fatigue (only with the first dose) that I could not even move. This is extreme and at least they are making you stay 2 hrs just in case. You can read about Leukine online and you should so you know what to expect. I did not do a vaccine trial but I did do 87 doses of Leukine. __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"