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Old 08-27-2009, 05:10 PM   #1
Leslie304
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Join Date: Jun 2009
Location: Hunterdon Cty, New Jersey
Posts: 51
Xeloda red hot feet!

Hi folks, I'm on my second round of Xeloda/Tykerb/Herceptin. My feet are killing me! I got the 'walking on hot coals' at the end of the first three weeks, on 2nd round of three weeks and I can barely walk! I've been using a good moisterizer and socks at night to keep them soft but still it's been excruciating to walk at all the past two days. Any ideas??? I read somewhere that a henna poultice takes the heat away but I can't find that post now. Any info??? Thanks to anyone who sees this and can help!
Leslie
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2009
3-15 Age 48 -found lump
Dx 4/15/09: IBC Stage III w/extensive lymph node involvement HER2+++
5/1/09: Adria/Cytoxan for x 3-no response
6/12/09: Taxol/Herceptin for 1 tx -no response
6/24/09: added Carboplatin to T/H x 3 - no response
7/09 -added F5U -no response
7/29/09: Herceptin/Xeloda/Tykerb no response
8-18-09: 2nd opinion at MDA - IDC not IBC! First Onc disagrees,
BRCA 1/2 Neg
8-19-09: continue on Herceptin/Xeloda/Tykerb-slight response
9-24-09 MRM right breast 10x10 cm tumor! (Huge!) no necrosis - Got clear margins! A miracle!
13 of 18 nodes positive
11-2-09 -12/10 started radiation
12-10-2009 - Finished with radiation!!
2010
1/13/2010-Back on Xeloda x six cycles (have been on Tykerb/Herceptin all along)
4/4/14 - stopped Xeloda/Tykerb one cycle early. Liver enzymes high!
4/20/2010 Clear PET Scan!! NED
6/10/2010 - Finished Herceptin11/8 - Brain METS! CRAP! WBRT only option given. Four mets, separate locations in brain, no SRS
12/10 - Herceptin/Tykerb/Xeloda
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