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Old 04-07-2016, 09:25 AM   #1
Freakzilla
Senior Member
 
Join Date: Mar 2014
Posts: 55
IT Herceptin In Europe

Had First Brain MRI since Surgery and Conformal Radiotherapy. The resection cavity looks fine.

The bad news is there is a tumor on the meninges. It's only 2mm big. There are two other tumors. They are 2mmm and 6.7mm.

The Onc spoke to the specialist about Gamma Knife and he didn't recommend it. They said it would probably work now, then come back on a different place on the Meniges later. I am seeking a second opinion on this as I feel deal with what is here now and if something turns up deal with it then.

The onc wants to start perjeta, herceptin and docetaxel now. I can't see how this will work. As none of them reach the brain. They said after surgery and radiotherapy it can break the Blood Brain Barrier down. They said they have had patients with systemic and brain mets before and it has reached the brain.

They have never had anyone in my wifes situation. IT Herceptin isn't available in the UK, I've asked them to look into it and given them info from RolePaul.
The Onc's said they want to hold back WBRT until if it is needed.

We are based in England and nowhere here does IT Herceptin. I know France is trialling it now, but not sure if we'll be able to get on the trial.

Does anyone know any places in Europe that do IT Herceptin?

Thanks
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