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Re: shortness of breath with Tykerb
I had pretty bad shortness of breath when on Tykerb/Taxol. I was in a clinical trial for taking Tykerb instead of Herceptin in the adjuvant setting (Stage III). It immediately affected by voice, (think raspy like the Godfather), and eventually made me so short of breath that I could not climb a flight of stairs without gasping. I also was very dried out, and developed almost unquenchable thirst. After 6 weeks, I got double pneumonia. All symtoms went away once I dropped tykerb and started on herceptin/taxol. Since I could not tolorate it at the recommended dose for a herceptin substitute I was then given a full year of herceptin. Hope this information helps you.
Estelle
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Estelle
DX 1/09
two tumors; .7 cm and 1.0 cm, same duct
lumpectomy 2/09
10 positive nodes; scans show no further metastasis, Stage IIIc
AC completed 5/09
Tykerb/Taxol (trial) 6/09, terminated from trial (due to bad reaction to Tykerb) 8/09; switched to Herceptin/Taxol
Taxol finished 10/09
Bilateral mastectomy 11/09
Radiation 12/09 to 1/10
Herceptin finished 7/10
NED
Start Vaccine Trial at Hopkins 2/11
Finished Vaccine Trial 11/11
Continue NED
Port Out 11/11
DEIP Flap 4/17)
8 Years NED 2/17
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