View Single Post
Old 11-07-2012, 11:02 AM   #19
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: 12 years from lumpectomy and good news

Thanks everyone, glad this good news brightens the board.
As for my leg, we have figured out what I have is like SHINGLES only without the rash. Now I understand why it hurts SO much, and is so slow to notice any healing.

Just as the shingles virus is in the spine and sits on the nerve root, so did that bit of disc that was removed. When shingles virus becomes active it irritates that nerve and the "shingles" appears some place down the line from the same nerve root.

My bit of disc was irritating my nerve in just the same way, and where I have the pain and problem is a ways down the line from that same nerve root.

We have something called Dermatomes, which is our skin area connected to different nerve roots. The little nerve branches are in the dermatones, and this is why a burn will sting and hurt so much. I feel Like I had a big burn.

It is slowly improving, and I am working on my walking every day now.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.

Last edited by StephN; 11-07-2012 at 06:07 PM..
StephN is offline   Reply With Quote