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Old 12-06-2006, 08:19 AM   #2
tousled1
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Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Hi Christine,

I started Herceptin in June and am plagued with bone/muscle/joint pain. Since I am only on Herceptin, I know that it is the culprit. I have talked to my oncologist about it but she seems to disagree with me that it's the Herceptin. I'm going to a pain management doctor wnad receiving pain medication from him which really helps. According to the pain management doctor muscle/bone/joint pain is a huge side effect of Herceptin. I know that with each infusion I get the pain gets worse. I have tried getting the Herceptin every week and then switched to every three weeks to see if the pain would be less. No difference in pain level whether I get the infusion every week or every three weeks. So I have opted to go the every three weeks. Matter of fact, I go this Friday for my Herceptin. I have been complaining since day number one that Herceptin and I just do not get along very well. At least all my scans and markers are good so the Herceptin must be doing it's job. Hang in there as I understand that once you stop the Herceptin the side effects slowly diminish. There was a post entitled "Herceptin side effects - real or perceived" on the board. You may want to do a search and find the thread. I'll look for it and post it if I find it.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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