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suzan w · 01-29-2008, 02:23 PM

When my biopsy came back Her2+++ the first doctor I saw drew a chart...headed "Good" and "Bad" He put ER+ in the "Good" column-because that meant I could be treated with an aromatase inhibitor. He put Her2+++in the "Bad" column, explaining that it meant I had an agressive form of cancer (invasive lobular) with a mutated gene that made it rapid growing. EEKS!!! Time for a second opinion!!! After surgery, and sentinel node biopsy, my (new) surgeon and oncologist said that I was a good candidate for Herceptin! Even though at the time it had not yet been approved by the FDA for early stage bc, my oncologist prescribed it Off Lable. And as we all know, the news just keeps getting better as far as Her2+++bc is concerned. So my emotions ran the gamut when I heard Her2+++ . This site has provided me with such a safety net.

01-29-2008, 02:23 PM	#7
suzan w Senior Member Join Date: Sep 2005 Location: Naples FL Posts: 1,744	When my biopsy came back Her2+++ the first doctor I saw drew a chart...headed "Good" and "Bad" He put ER+ in the "Good" column-because that meant I could be treated with an aromatase inhibitor. He put Her2+++in the "Bad" column, explaining that it meant I had an agressive form of cancer (invasive lobular) with a mutated gene that made it rapid growing. EEKS!!! Time for a second opinion!!! After surgery, and sentinel node biopsy, my (new) surgeon and oncologist said that I was a good candidate for Herceptin! Even though at the time it had not yet been approved by the FDA for early stage bc, my oncologist prescribed it Off Lable. And as we all know, the news just keeps getting better as far as Her2+++bc is concerned. So my emotions ran the gamut when I heard Her2+++ . This site has provided me with such a safety net. __________________ Suzan W. age 54 at diagnosis 5/05 suspicious mammogram-left breast 5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++ 6/14/05 bilateral mastectomy, node neg. all scans neg. Oncotype DX-high risk 8/05-10/05 4 rounds A/C 10/05 -10/06 1 yr. herceptin arimidex-5 years 2/14/08 started daily self administered injections..FORTEO for severe osteoporosis 7/28/09 BRCA 1 negative BRCA2 POSITIVE 8/17/09 prophylactic salpingo-oophorectomy 10/15/10 last FORTEOinjection RECLAST infusion(ostoeporosis) 6/14/10 5 year cancerversary! 8/2010-18%increase in bone density! no further treatments Oncologist says, "Go do the Happy Dance" I say,"What a long strange trip its been" 'One day at a time' 6-14-2015. 10 YEAR CANCERVERSARY! 7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use 6-14-16. 11 YEAR CANCERVERSARY!! 7-20-16 Prolia injection for severe osteoporosis 2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL. 6-14-17 12 YEAR CANCERVERSARY!! still suffering from CIU. 4 hospitilizations in the past year as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!! 6-14-18 13 YEAR CANCERVERSARY!! NED!!