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Old 12-18-2012, 09:18 PM   #6
europa
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Join Date: Jan 2012
Posts: 362
Re: Prayers requested

I am so sorry to hear about this. I have been in contact with Ilan from Precipio. They do the tumor profiling everyone has been buzzing about. He sent me the form as I am getting a sample sent up to him for profiling. If you pm me and give me your email address, I can send it to you and email Ilan letting him know you may be calling. He's a great guy. Also, I believe it's covered by insurance. Ilan told me that they have yet to get denied by an insurance co. He also mentioned that once the forms are signed off by your Oncologist, Precipio gets the sample within 3 days tops. So it's quite fast.
Let me know how I can help. Here is Ilan's info:
Ilan Danieli (CEO at Precipio)
Tel: 203.787.7888 ext. 536
Email: idanieli@precipiodx.com

You're in my prayers.
__________________
DX 10/2011
PET Scan + MRI 10/2011
Lumpectomy 11/11/11
Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node)
AC started 12/2011 ended 1/2012
Taxol + Herceptin weekly for 12 weeks ended 4/2012
30 zaps of radiation done 6/2012
Tamoxifen 6/2012
every 3 weeks of Herceptin for another year.
Metformin Trial 8/12
10/12 MRI- CLEAR
01/13 BRAIN MRI- CLEAR!
01/13 Neck MRI- CLEAR!
FINISHED HERCEPTIN 1/9/2013...Woot Woot
Starting Walter Reed Vaccine Trial 2/13
CT Scans + ultrasound of abdomen CLEAR-5/13
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life.
7/27/2018 hysterectomy and oopherectomy
01/07/2019 Mastectomy and expanders put in
3/22/2019 Vtach, almost died. Cause unknown.
7/22/2019 New perky boobs put in
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018.


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8 YEARS NED
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