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Old 09-07-2012, 03:37 AM   #58
NEDenise
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Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
Re: Gammaknife, Tykerb...reality check

You guys are so sweet! I appreciate all your advice and concern more than you probably realize!

Vicki and Flori - Checked with onc...she definitely doesn't want my stomach to have ANY food in there! Sooooo...she prescribed Zofran.

Nancy - who ISN'T a Steisand fan, at some level? What a gift that voice is!

Paula - sit during the school day? Hahahaha! Elementary teachers almost never sit. But, believe me, once I'm home...my recliner is my best friend!
My echo (last Friday) was excellent...so any "windedness" must be from the weight I've gained!
And, my friend, you can read all about this ridiculous brain met journey on the thread "Brain Mets *&%$*" back in July. I'd post it here, but I can't get the link to work!

Sandra - I stash Immodium like squirrels stash nuts!

Brenda - I'm reeeeaaaaaly hoping that once I get all the timing correct...my experience with Herceptin and Tykerb will be like yours.

Penny - Thank you, Jesus indeed!!

Saw the Gamma Rad Onc yesterday. He's optimistic that they were able to zap and kill all the active disease, AND, he doesn't think the BC had a chance to spread to the lining of my brain (lepto meningeal disease) so...that was a relief, for now anyway.

Off to school! I haven't been this excited to go to work in years!! God is Good!

Hugs all around!
Please keep praying that the rad onc is right, and that no new lesions pop up between now and the November MRI.

Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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