[phil]

my wife Lorraine is doing great on t dm-1 , 26 months, ned over a yr. sounds like you are having low platelets, like her. red rash, bloody noses, etc. she reduced to 3.0 back in 2010. she was in an eap " trial " , now in an extension study . last 3 doses she and others w/ low plats have been granted an "exception " , if her plats are below 75,000 , she can wait a week or two , to get them over 75,000. went 4 weeks, then 5 weeks , then 4 weeks, and plats have risen some already. ( normal is 150,000 + ). we hope to go to every 4 weeks after appr. Lorraine follows a diet of some top quality , bone-in red meat, greens, berries , nuts, pineapple. sharks liver oil , chlorophyll from health food store. 1000mg folic acid. works well with red counts which may give u more energy. works ok w/ plats. when L. gets close to 100,000 plats, those red " rashes ' or capllaries fade some. ask your doc what your plats have been. they clot blood. think about telling your story . PM me to tell it , its a travesty that this drug hasn't been appr. costs so many lives. God Bless , good luck.