HER2 Support Group Forums - View Single Post - Swollen Pituitary Gland/Optic Nerve

Thanks all for your replies. I wanted to give you an update and let you know that prednizone seems to be helping so far. I haven't vomitted in 2 weeks now! And my headaches are seemingly better also. Headed to an endocrinologist in a couple of weeks so will share more after I learn about what could be going on and what we're going to do about it.

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6/09 - self exam - lump!
8/09 –Dx - IDC, left breast. Suspicious mass,right breast (more testing required).
9/09 - Double mast/cholecystectomy /nodes removed. IDC confirmed, right breast. liver/bone mets. ER-/PR -/Her2 +. BRCA 1/2 -.
10/09 - Started Taxotere, Carboplatin, Herceptin, Zometa. Hospitalized with Tetany.
1/10 - Finished Taxotere, Carbo, continued Herceptin, Zometa. PET/CT - improvement.
2-3/10 - Rads (25 rounds).
8/10 – inflammation vs. malignancy?
1/11 – progression. started Xeloda.
9/11 – progression. pancreatitis or tumor? Chest ‘rash’ appeared.
10/11 – confirmed pancreatitis. Halted Xeloda.
11/11 – skin mets confirmed.
12/11 - started Tykerb, back on Xeloda.
1/12 – cut Xeloda dose in ½. skin mets fading!
4/12 - no more Xeloda. skin mets resolved.
8/12 - brain mets found.
9/12 - gamma knife and fractionated brain radiation.
1/13 - progression throughout body. brain mets shrunk/resolved. no more Tykerb.
2/13 - starting T-DM1 trial.

07-06-2012, 03:21 PM	#6
bevilj Member Join Date: Oct 2010 Posts: 18	Re: Swollen Pituitary Gland/Optic Nerve Thanks all for your replies. I wanted to give you an update and let you know that prednizone seems to be helping so far. I haven't vomitted in 2 weeks now! And my headaches are seemingly better also. Headed to an endocrinologist in a couple of weeks so will share more after I learn about what could be going on and what we're going to do about it. __________________ 6/09 - self exam - lump! 8/09 –Dx - IDC, left breast. Suspicious mass,right breast (more testing required). 9/09 - Double mast/cholecystectomy /nodes removed. IDC confirmed, right breast. liver/bone mets. ER-/PR -/Her2 +. BRCA 1/2 -. 10/09 - Started Taxotere, Carboplatin, Herceptin, Zometa. Hospitalized with Tetany. 1/10 - Finished Taxotere, Carbo, continued Herceptin, Zometa. PET/CT - improvement. 2-3/10 - Rads (25 rounds). 8/10 – inflammation vs. malignancy? 1/11 – progression. started Xeloda. 9/11 – progression. pancreatitis or tumor? Chest ‘rash’ appeared. 10/11 – confirmed pancreatitis. Halted Xeloda. 11/11 – skin mets confirmed. 12/11 - started Tykerb, back on Xeloda. 1/12 – cut Xeloda dose in ½. skin mets fading! 4/12 - no more Xeloda. skin mets resolved. 8/12 - brain mets found. 9/12 - gamma knife and fractionated brain radiation. 1/13 - progression throughout body. brain mets shrunk/resolved. no more Tykerb. 2/13 - starting T-DM1 trial.