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Old 11-12-2013, 10:56 AM   #31
Rolepaul
Senior Member
 
Join Date: Jan 2012
Location: Boulder Colorado as of January 2013
Posts: 389
Re: Auntie Em! Auntie Em! Danger Will Robinson...

So I am not in Kansas, but close by in the Denver area. It takes almost a week for me to get information such as yours. Life is definitely slower here.
I am back in the office and have time to look at the web site. I hate hearing about the bad things happening to you! If the disease is in the spinal area, all the more so to get on Intrathecal Herceptin. I think that adding Topotecan to the brain is also a good idea. Nina still remains clear four years after it was first found in the brain and two years after it was found in the spinal nerves. All I can say is that this disease is a rough roller coaster! Send a personal message once the doctors are done with the coffee grounds and tea leaves.
Rolepaul
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