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sassy · 12-14-2014, 05:37 PM

For Her,

The time until your next scan will be an anxious one, I am sure. I will keep you both in my thoughts and prayers and am sending positive thoughts for a clear scan.

I do not have experience with brain mets, but there are many here who are knowledgable and have had good experiences who I am sure will share with you.

I might suggest that your add your hormone status to your signature as that too is a factor in treatment.

My best to you both.

12-14-2014, 05:37 PM	#2
sassy Senior Member Join Date: Sep 2005 Location: Mountains of Virginia Posts: 2,267	Re: MET devastation & desperate for advice For Her, The time until your next scan will be an anxious one, I am sure. I will keep you both in my thoughts and prayers and am sending positive thoughts for a clear scan. I do not have experience with brain mets, but there are many here who are knowledgable and have had good experiences who I am sure will share with you. I might suggest that your add your hormone status to your signature as that too is a factor in treatment. My best to you both. __________________ Rhonda (Sassy) dx age 45 DX 2/15/05 Stage IIb (at surgery)restaged IIIa Left mast .9cm tumor 5 of 14 nodes Triple Positive 4 DD A/C 12 Taxol/Herceptin 33Rads Strange infect mast site one year aft surg, hosp 1 wk Herceptin for total of 18 months Lupron Monthly 4 yrs Neurontin for aches, pains and hot flashes(It works!) Ovaries removed 11/09 stop Lupron and Neurontin Arimidex 6 yrs (tried Femara, no SE improvement) Tried Exemestane-hips got so bad could hardly walk Back to Arimidex for year seven Zometa 2X Annual for 7years, Lasix Stop Arimidex 5/13 Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa 5/14 Start Tamoxifen 3/15 Stem cell transplant to stimulate femur bone growth/healing 5/15 Complete fracture of right femur/Titanium rods both femurs 9/16 Start Evista stopTamoxifen 3/17 Stop Evista--unwelcome side effects! NED and no meds....... 14YEARS NED!