HER2 Support Group Forums - View Single Post

Gerri · 12-30-2010, 08:52 AM

Hi Leslie,

Taxol gave me pretty significant neuropathy in my feet and lower legs. I was numb for about a week from the knees down 3 days after my infusions and had major problems with my toe nails; my feet always felt like I was walking on pins and needles. This gradually got better with time. I did not take anything but looking back I would have at least given Vit B a try. It has been several years and I still have slight tingling left in my toes. I saw my rheumatologist yesterday and he asked me if I still had neuropathy. He offered to put my on Neurontin if it worsens. I think this is something I will just have to live with but it really doesn't bother me anymore. I believe there are a few members who have successfully tried Neurontin, hopefully they will see your post and reply. It may be worth looking into.

Best of luck to you. I hope you find relief soon.

12-30-2010, 08:52 AM	#4
Gerri Senior Member Join Date: Oct 2006 Location: Southern California Posts: 900	Re: Neuropathy Hi Leslie, Taxol gave me pretty significant neuropathy in my feet and lower legs. I was numb for about a week from the knees down 3 days after my infusions and had major problems with my toe nails; my feet always felt like I was walking on pins and needles. This gradually got better with time. I did not take anything but looking back I would have at least given Vit B a try. It has been several years and I still have slight tingling left in my toes. I saw my rheumatologist yesterday and he asked me if I still had neuropathy. He offered to put my on Neurontin if it worsens. I think this is something I will just have to live with but it really doesn't bother me anymore. I believe there are a few members who have successfully tried Neurontin, hopefully they will see your post and reply. It may be worth looking into. Best of luck to you. I hope you find relief soon. __________________ Gerri Dx: 11/23/05, Lumpectomy 12/12/05 Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative ER+ (30%) /PR+ (50%), HER2+++ AC X 4 dose dense, Taxol X 4 dose dense Herceptin started with 2nd Taxol, given weekly until chemo done then given every 3 weeks for one year ending on March 16, 2007 Radiation 30 treatments Tamoxifen - 2 yrs (pre-menopausal) May 2008 - Feb 2012 Femara Aug 2008 - Feb 2012 Zometa every 6 months March 2012 - Stop Femara, now Evista for bone strengthening ********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault