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Oh Flori,
I feel bad about not writing earlier, but even when I did not write I was thinking of you and hoping that you were OK. Then I saw about your migranes, but I could not relate to that because I have not even been able to start the T + X yet. By the way how are the migranes now?
Most importantly I'm sorry that this chemo is so hard on you. But remember the idea is that it will put you into remission and hopefully never will have to take the nasty stuff again!
How long does your oncologist want you to stay on the Xeloda? Maybe 4 or 6 cycles? You have one down of those, so hopefully by mid summer you will be off?! Maybe you'll stay on the Tykerb for a while, but that should not be quite so bad. I understand the Xeloda side effects go away once you stop it.
I wish I had something more to offer to cheer you up, let me know how are you doing!
Hugs and prayers,
Odette
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May 18, 2006 Age 52,
Diagnosed infiltrating ductal carcinoma
er/pr- HER2 + 3.9 by FISH
June-August 2006 AC chemo
August-October 2006 Taxotere + Herceptin
November 18, 2006 Mastectomy 16 involved lymph nodes
Jan 2, 2007 start radiation
Stage IV, Jan 12, 2007 recurrence in cervical lymph nodes while on Herceptin, stopped Herceptin
Rad oncologist extended the radiation field, good response
Started Tykerb Xeloda on beginning of May 2007
Progression to lungs and conglomerate lymphadenopathy July 2007
Undecided about next treatment
'One does not get to choose one's adventures'
I'm experimenting with my diet, using green tea, flax seed curry and olive oil
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