This is copied from the IBC page:
Seven (plus) years out from Inflammatory; Four 1/2 w/brain mets....
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Jan. '99 Dx'd at age 50. Stage IIIb <!-- / icon and title --><!-- message -->
My treatment consisted of: Surgery first, followed by 4 rnds of A/C. No rads.
The entire bottom half of my right breast was 'orange peel' - I had an additional two tumors, inside upper (3.8cm) and lower (1.9cm) quandrants, plus 6 nodes positive of 26.
July 2002 - Recurrance two plus yrs. later. Mediastinal nodes/spot on lung and pelvis. Brain mets dx'd just two mos. later.
Focalized rads for 16 brain mets in batches over course of 18 mos. Successful to treated areas.
Navelbine/Herceptin put body in NED after a few months. Stopped all treatment.
Third recurrance of brain mets treated with Xeloda/Temodar responding by shrinkage and stable to all new eight lesions. Still under X/T schedule coming up on two yrs.
Still NED in body, (knock wood) four 1/2 yrs out, with active/stable brain mets.
Feeling amazed and grateful,
yours truly, ;o)
pattyz
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