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NEDenise · 10-01-2011, 09:49 AM

Okay...
I don't mean to whine. Okay, I guess I do.
The pain, I can accept, but the swelling has me spooked.
I'm worried that I seem to be the only one on this board that has this.

My onc. in "not concerned".
The Herceptin Hotline nurse "never heard of this side effect".

My relief from Neurontin was short-lived.
I've now added Tylenol, round the clock. (can't use advil...surgery in a week)

Onc has strongly recommended against any sort of supplements except the calcium and vit.D I take for osteopaenia, and a multi vit.

Anyone heard of any of our other HER2 sisters with hand swelling/pain while on Herceptin only?

I don't mean to be impatient, but I've read every Herceptin, joint pain, and side effect post on the site, so please don't post a link to one of them. The answer isn't there.

Thanks so much for letting me get this off my chest. I appreciate your support!!!
Denise

10-01-2011, 09:49 AM	#7
NEDenise Senior Member Join Date: Aug 2011 Location: Philly Suburbs Posts: 1,709	Re: Help! My hand and foot joints hurt!!! Okay... I don't mean to whine. Okay, I guess I do. The pain, I can accept, but the swelling has me spooked. I'm worried that I seem to be the only one on this board that has this. My onc. in "not concerned". The Herceptin Hotline nurse "never heard of this side effect". My relief from Neurontin was short-lived. I've now added Tylenol, round the clock. (can't use advil...surgery in a week) Onc has strongly recommended against any sort of supplements except the calcium and vit.D I take for osteopaenia, and a multi vit. Anyone heard of any of our other HER2 sisters with hand swelling/pain while on Herceptin only? I don't mean to be impatient, but I've read every Herceptin, joint pain, and side effect post on the site, so please don't post a link to one of them. The answer isn't there. Thanks so much for letting me get this off my chest. I appreciate your support!!! Denise __________________ 1/11-needle biopsy 2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes 3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH! 4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks 8/26/11 finished Taxol!!! 10/7/11 mastectomy/DIEP recon 11/11 radiation x28 1/12/12 1st CANCER-VERSARY! 1/12 Low EF/Herceptin "Holiday" :( 2/12 EF up - Back on Herceptin, heart meds 4/2/1212 surgery to repair separated incision from DIEP recon 6/8/12 Return to work :) 6/17/12 Fall, shatter wrist,surgery to repair/insert plate :( 7/10/12 last Herceptin 7/23/12 Brain Mets %$&#! 3cm and 1cm 8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb 8/23/12 Back to work 12/20/12 Injure back-3 weeks in wheel chair 1/12/13 2nd CANCER-VERSARY! 1/14/13 herniate disk in back - surgery to repair 1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm 5/3/13 Start Avastin to shrink necrosis 5/10/13 begin weaning steroids 6/18/13 Brain MRI - Avastin seems to be working! 6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear! 7/5/13 finally off steroids!! 7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin! 7/13/13 Symptoms return - back on steroids 7/26/13 Back on Avastin - try again! 8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :) 9/9/13 Brain MRI - fingers crossed “ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert